Authors

1. Buck , Harleah G.
2. Howland , Chelsea
3. Stawnychy , Michael A.
4. Aldossary , Heba
5. Cortés , Yamnia I.
6. DeBerg , Jennifer
7. Durante , Angela
8. Graven , Lucinda J.
9. Irani , Elliane
10. Jaboob , Saida
11. Massouh , Angela
12. Oberfrank , Natany Da Costa Ferreira
13. Saylor , Martha Abshire
14. Wion , Rachel K.
15. Bidwell , Julie T.

Abstract

Newly identified caregiver-reported activities support updating the theory of self-care in chronic illness to include activities currently considered ancillary to HF self-care. Identified gaps highlight the need to define specific caregiving activities, determine task difficulty and burden, and identify caregiver self-care strategy and education needs. Exposing the hidden work of caregiving is essential to inform policy and practice.