Palliative Care for Infants, Children, and Adolescents: A Practical Handbook

Carter, B., Levetown, M. (Eds.). Balitmore, MD: Johns Hopkins University Press, 2004. 416 pp. $29.95. (800) 537-5487. http://www.press.jhu.edu

Palliative care for terminally ill adults is receiving growing recognition as a major component in medical care. Yet far less is known or understood about the needs of infants and children with life-limiting conditions. Developed by leading researchers and practitioners from relevant disciplines, this practical guide provides professionals involved in pediatric end-of-life care with comprehensive information for hands-on care in a single volume.

Early chapters present the epidemiology of palliative pediatrics, ethical principles, education, and advocacy. The decision-making process, holistic symptom management, communication with the child and family, and issues such as bereavement and caregiver suffering are discussed. Individual chapters focus on palliative care in specific settings (NICU, PICU, home, school, and community) and for major conditions (genetic disease, HIV, and cancer). Case studies discuss the experience and perspective of parents. The book concludes with a list of additional resources and support organizations for professionals and family members.