Keywords

diabetes burnout, diabetes distress, self-care, type 1 diabetes

 

Authors

  1. Abdoli, Samereh PhD, RN
  2. Hessler, Danielle PhD
  3. Vora, Amit MD, FACE
  4. Smither, Betsy MPH, CHES
  5. Stuckey, Heather DEd

ABSTRACT

Background: People with type 1 diabetes are at increased risk for diabetes burnout, resulting in suboptimal diabetes care and quality of life. While the existence of diabetes burnout is widely acknowledged, there is no evidence-based definition, means of measurement, or interventions to address it.

 

Objective: This study was aimed at increasing our understanding of the lived experiences of diabetes burnout among adults with type 1 diabetes.

 

Methods: A qualitative descriptive study was conducted with a sample of 18 adults with type 1 diabetes who reported a current or previous experience of diabetes burnout. Data were collected using in-depth interviews and analyzed using qualitative content analysis.

 

Results: Four main themes were identified: mental, emotional, and physical exhaustion from having diabetes; detachment from illness identity, diabetes self-care, and support systems; contributing factors to diabetes burnout; and strategies for preventing or overcoming diabetes burnout.

 

Conclusion: Although exhaustion is an entry point for diabetes burnout, the findings suggest that detachment from illness identity, diabetes self-care, and support systems form a core component. Detachment may explain poor outcomes in individuals experiencing diabetes burnout.