Keywords

end-of-life care, family, ovarian cancer, palliative care

Authors

1. Stilos, Kalli MScN, RN, CHPCN(C)
2. Fitch, Margaret PhD, RN
3. Nolen, Amy Eleanor Msc, MBBS
4. DasGupta, Tracey MN, RN, CON(C)
5. Sapsford, Marilyn MDiv, BA
6. McAndrew, Alison BA, PgDip RAP
7. Moura, Shari MN, RN, CON(C), CHPCN(C)

Abstract

Ovarian cancer is challenging, both physically and psychologically, because of the advanced nature of the disease at diagnosis, adverse effects of the disease and treatment, and impact on roles and responsibilities. The family plays an integral role in promoting and maintaining the health of family caregivers, as well as providing physical and emotional support. The purpose of this study was to explore the experience of family caregivers caring for their loved ones with advanced ovarian cancer. Thirteen family caregivers were interviewed. The analysis of the data revealed 4 significant challenges that characterized the caregiving experience over time: confronting the initial diagnosis, dealing with fluctuations in physical status, confronting a turning point, and facing decline and death. Woven throughout these challenges, family caregivers routinely described difficulties in accessing information and navigating the health care system, which caused them added concern and frustration.