Abstract
Objectives: The purpose of this study was to identify the sources of lymphedema education to breast cancer survivors, the time frame of delivery, and the perceived usefulness of each source.
Study Design: A survey was distributed to female breast cancer survivors via word of mouth.
Background: Accurate knowledge regarding symptoms, risk factors, prevention, and management of lymphedema is imperative for women who have been treated for breast cancer. The literature review revealed a lack of consistency in the lymphedema education process following breast cancer diagnosis, including the role of health care providers, the timing, and the frequency of delivery.
Methods and Measures: The survey contained multiple-choice questions regarding medical history, educational delivery, and lymphedema knowledge.
Results: Of the 68 women surveyed, the majority received information from their surgeon (42%), medical oncologist (32%), and physical/occupational therapist (28%). The top 3 sources of information reported to be "quite a bit" useful were physical/occupational therapy (55%), the Internet (41%), and surgeons (25%). Respondents reported receiving education during cancer treatment (43%) or within 6 months of finishing treatment (43%).
Conclusion: From the study sample, there are variations in the information provided, including the source of its delivery, time frame of delivery, and the value perceived by the patient. The data suggest that physical therapists are underutilized as a primary resource for education delivery despite being perceived as a valuable information source. Physical therapists should advocate for their role in the educational process as well as for standardization of information delivery for optimal patient care.