Keywords

caregivers, chronic disease, family, hospice and palliative care nursing, pediatric nursing

 

Authors

  1. Cormack, Carrie DNP, APRN, CPNP-BC
  2. Phillips, Shannon M. PhD, RN
  3. McDaniel, Christina RN, MSN, CHPPN

Abstract

Children with complex chronic conditions and their families face multiple health issues, including navigating the health care system, which can be improved through palliative care services. Children nearing end of life may qualify for hospice care services, but for other children living with complex chronic conditions, a gap remains in the services being provided. This article provides a case example of a charter school for children with complex needs in the southeastern United States that is collaborating with a pediatric hospice and palliative care provider to incorporate palliative care into comprehensive services. The plan for implementation, anticipated benefits, and potential barriers are discussed.