In observance of National Sickle Cell Awareness Month, share these helpful resources with patients and communities affected by sickle cell disease (SCD).
Sickle Cell Disease Association of America (SCDAA)
http://www.sicklecelldisease.org
SCDAA aims to empower and advocate for people with sickle cell disease (SCD) by raising awareness about this disease and promoting universal care for this population. As part of its strategy, SCDAA partners with local and state government agencies, medical facilities, and nonprofits in developing programs at the local, state, and national levels. To date, SCDAA has 48 member organizations that support its work in research, professional health education, and patient services.
Sickle Cell Disease Foundation (SCDF)
http://www.scdfc.org
SCDF recognizes SCD as a human condition that requires "true connection and a holistic lens," which considers the disease's impact on patients' sense of self and belonging, among other aspects of their lives. The oldest nonprofit promoting SCD awareness, SCDF offers free programs, including counseling and psychosocial services for those with SCD and their caregivers.
Sickle Cell Disease Coalition (SCDC)
http://www.scdcoalition.org
SCDC amplifies the voices of people with SCD by focusing its work on four key areas: healthcare access, training and professional education, research and clinical trials, and global issues. The group partners with stakeholders across the globe to promote access to sustainable care in countries with limited resources.
Sickle Cell Reproductive Health Education Directive (SC RED)
http://www.sicklecellred.org
SC RED calls attention to the importance of reproductive healthcare in individuals living with SCD. Its programs are geared toward helping those with SCD make informed decisions about their sexual, reproductive, and maternal health. It also collaborates with healthcare providers, policy makers, and community leaders to reduce disparities and promote health equity.