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Lupus is often considered an "invisible" disease, making patients feel isolated. In observance of Lupus awareness month, share these resources with your patients, family, friends, and community.

 

Lupus Foundation of America (LFA)

http://www.lupus.org

 

Striving to improve the quality of life for anyone affected by lupus, LFA has funded over 400 research studies to find a cure for lupus and has raised over $500 million in federal funds for lupus research and education. The foundation organizes an annual Walk to End Lupus Now to raise money for research and raise lupus awareness. LFA also provides access to health education specialists nationwide for nonmedical support, disease education, and support groups.

 

My Lupus Team

http://www.mylupusteam.com

 

My Lupus Team is an inclusive and judgment-free social network where individuals with lupus can get emotional support. The website features an activity page where anyone can post images, stories, and anecdotes about their lupus journey; a "Find People Like You" tool to locate lupus patients in your location or with a similar diagnosis; and a Q&A page that spans diverse educational topics.

 

LANtern (Lupus Asian Network)

http://www.hss.edu/LANtern.asp

 

LANtern is a hospital-based bilingual support and education program that serves Asian Americans with lupus and their families. Programs include a peer support program in Cantonese and English, a toll-free support line with bilingual peer health educators (866.505.2253 outside NYC or 212.774.2508 in NYC), and bilingual educational publications. It also offers lupus presentations to medical and social service agency providers and the general community to promote lupus awareness and education.